A week out – no itching!

I’m a week out after surgery and overall, I feel pretty good. I tire easily though, so lots of couch time. My left upper arm (underside and back of arm) are numb as is the side of my chest and my armpit. I randomly feel pins and needles throughout my arm or sharp pains – still hoping for continued numbness vs. nerve pain! This was about the time after my last surgery when I started to get itchy – so reeeeally hoping I skip the rash! I did wake up to feeling wetness from where my drain is coming out of my side and called the surgery team immediately. They weren’t too concerned as the drain is still compressed and pulling fluid. They said I may have stretched it or was moving more than usual and was advised to just wear an old shirt today.

I got a text alert to a new lab result last night (1/25). Of course I looked – I hate surprises! When I check lab results online now, I hope to not see the dreaded red exclamation point next to the results. Red exclamation point = bad news. This lab result did NOT have a red exclamation point! Pathology reports are hard to decipher, but I think this one says they took out 7 additional lymph nodes (that’s 13 total) and found evidence of a small amount of cancer in one. I meet with my oncologist and surgeon next week, so will get more information then.

I’ve been reading a lot this last week – going between serious Stay Healthy! books, which can send me down a rabbit hole and lighter, fluffy fiction. Anticancer, A New Way of Life is super interesting but maddening (eff capitalism). I highly recommend – let me know if you read it and want to discuss! Rest is Resistance (also, seriously eff capitalism) should be required reading and also, let’s discuss!

Upcoming appointments: (I think I will hit my deductible before Feb is out!)

  • 2/1 with my oncologist
  • 2/2 post op with my surgeon
  • 2/6 echocardiogram
  • 2/7 port surgery
  • 2/17 chemo teach class
  • 2/22 chemo starts (first round every 2 weeks for 4 cycles)

I am starting to think about what to pack in my chemo bag, as it’s an all day affair. I was given some awesome coloring books, colored pencils, books, and warm blankets. My Kindle is usually pretty full but I will always take book recommendations (healthy or fluffy!) – let me know!

Narrows Bridge Walk on 1/25

7 responses to “A week out – no itching!”

  1. Julie – sadly, I know all too well about infusions so when a friend/loved one gets the awful C diagnosis, it’s my call to make a C bag. I always make a go-to cancer bag for the patient for chemo/radiation/hospital visits. In this bag I always include:
    – big beautiful zip bag with lots of room
    – cozy blanket because infusions make me cold
    – cozy socks and slippers
    – coloring books and colored pencils or adult like crayons
    – recording device with notebook and pen. It’s amazing how much you miss in those appointments because your brain wanders off in fear, sadness or thoughts of what the future holds. If it’s recorded, you can go back anytime and refresh yourself, play it for that friend/family who has background in medical who can interpret for you without having to google which is the worst thing you can do
    – magazines – cooking, trashy mags, etc and cross word or word find stuff
    – a book or two. I just read, I mean devoured, Spare, the new Prince Harry book. Wow, just wow. Need a highlighter for all the stuff to discuss in book club!
    – nice water cup, a Stanley if you can find!
    – 10’ charging cord for your phone

    These are the things I find helpful for infusions. I do not have cancer but have lots of other crap so the hospital and I are very familiar with each other.

    You are a fantastic writer and love reading your blog and staying up to date. Keep on writing…maybe you’ll turn this adventure into a book to be published!

    Be well!!! ❤️

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    1. This is an amazing list – thank you!! So sorry about your own medical ish. ❤️

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  2. Julie-Hello old friend! It’s amazing to hear your voice and read about your journey! Sending you good vibes, positive thoughts, and now book suggestions!

    I have two fiction recs: American Dirt (intense but really well written) and Midnight Library (easy and fast). Also if you are up for a Podcast while you are coloring I adored Dolly Parton’s America. It was well done and I realized I had Dolly all wrong this whole time.

    Thank you for sharing your journey. We are rooting for you Julie!

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  3. Julie! Thank you for sharing your story – you got this!

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  4. Hello again! Thinking of you and hoping for positive outcomes and minimal chemo side effects. I also recommend reading Midnight Library and Anxious People to pass the time. Sending warm thoughts and support.

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    1. I looooved Midnight Library! I think I also read Anxious People – I’ll have to look! Thank you!!

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  5. I wonder what CPT code is “just wear an old shirt.” Sending you the power!

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